Activities

a European non profit association whose member organisations work together
to give people with hereditary ataxia as normal a life as possible.

Internal organisation
- Organising the annual general membership assembly
- Organising meetings of the Board of Directors and/or the Daily Management
- Developing and reporting on a policy and a strategy (general membership assembly)
- Electing the Board of Directors and the Daily Management (general membership assembly)
- Managing and reporting on day-to-day activities (daily management)
- Collecting membership fees (treasurer)
- Creating annual work plans and reports (daily management)
Information services
- Gathering and distributing information (volunteers)
- Developing folders (volunteers)
- Developing and maintaining a web site (volunteers)
Advocacy
- Attending key congresses (volunteers)
- Developing and maintaining electronic presentations for meetings (volunteers)
- Co-organising medical and scientific congresses on hereditary ataxia
- Attending and participating in congresses and meetings of key organisations (volunteers)